NHP Publications

Sharing Panel Approved Publications

U'mau Otuokon 10/19/22 U'mau Otuokon 10/19/22

NHP Annual Report - 2021/2022

NHP Annual Report for the year ending 31 March 2022.

U'mau Otuokon 7/9/22 U'mau Otuokon 7/9/22

NHP Acute Pain Action Plan published

NHP Pain Subgroup publishes it’s proposal guide for services dealing with Sickle Cell patients

U'mau Otuokon 6/22/22 U'mau Otuokon 6/22/22

NHP National Voxelotor Guideline

The NHP Working group have completed and here publish a guideline for the use of novel drug, Voxelotor

U'mau Otuokon 4/20/22 U'mau Otuokon 4/20/22

NHP Annual Report 2020/2021

U'mau Otuokon 2/14/22 U'mau Otuokon 2/14/22

NHP Publishes Guideline for use of Crizanlizumab

Guest User 11/11/20 Guest User 11/11/20

New guidance for clinicians on COVID-19 in patients with haemoglobinopathies and inherited rare anaemias.

Guest User 10/8/20 Guest User 10/8/20

Protecting vulnerable patients with inherited anaemias from unnecessary death during the COVID-19 pandemic

Guest User 10/8/20 Guest User 10/8/20

COVID-19 and Haemoglobinopathies: National Data Collection - Presentation to All-Party Parliamentary Group on Sickle Cell and Thalassaemia

Guest User 10/8/20 Guest User 10/8/20

National survey of COVID-19 in patients in haemoglobinopathy and rare inherited anaemias patients

Guest User 9/3/20 Guest User 9/3/20

NHSE Statement on Haemoglobinopathy Co-ordinating Centres and National Haemoglobinopathy Panel

Guest User 9/1/20 Guest User 9/1/20

Advice for Clinicians on Risk Assessment for Severe COVID-19 in Patients with Haemoglobinopathies and Rare Inherited Anaemias

Amara Inusa 7/7/20 Amara Inusa 7/7/20

Black Lives Matter

Amara Inusa 7/3/20 Amara Inusa 7/3/20

Covid-19: Updated guidance for people with Thalassaemia

Amara Inusa 7/3/20 Amara Inusa 7/3/20

Patient information on COVID-19 in haemoglobinopathy and rare inherited anaemia patients

Amara Inusa 7/2/20 Amara Inusa 7/2/20

NHP Publications

NHP Annual Report - 2021/2022

NHP Acute Pain Action Plan published

NHP National Voxelotor Guideline

NHP Annual Report 2020/2021

NHP Publishes Guideline for use of Crizanlizumab

New guidance for clinicians on COVID-19 in patients with haemoglobinopathies and inherited rare anaemias.

Protecting vulnerable patients with inherited anaemias from unnecessary death during the COVID-19 pandemic

COVID-19 and Haemoglobinopathies: National Data Collection - Presentation to All-Party Parliamentary Group on Sickle Cell and Thalassaemia

National survey of COVID-19 in patients in haemoglobinopathy and rare inherited anaemias patients

NHSE Statement on Haemoglobinopathy Co-ordinating Centres and National Haemoglobinopathy Panel

Advice for Clinicians on Risk Assessment for Severe COVID-19 in Patients with Haemoglobinopathies and Rare Inherited Anaemias

Black Lives Matter

Covid-19: Updated guidance for people with Thalassaemia

Patient information on COVID-19 in haemoglobinopathy and rare inherited anaemia patients

NHP response to PIMS

The National Haemoglobinopathy Panel, United Kingdom.