Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

Clinical trials, studies & innovative projects

There is a host of clinical trials/studies and innovative projects underway in the network. We will bring you up-to-date information on these as we get the data.

New Therapies

Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

NHP Cellular Therapy Operational Group (CTG)

Learn more about the NHP Cellular Therapy Operational Group (CTG)

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Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

Pfizer Shares Patient Letter re Voxelotor (Oxybryta®) Withdrawal

Pfizer Shares Patient Advice Regarding Immediate Withdrawal of Voxelotor (Oxybryta®)

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Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

Voxelotor (Oxbryta®) Withdrawal - NHP Patient Letter

Following the unforeseen Pfizer withdrawal of Voxelotor (Oxbryta®) Medication for Sickle Cell Disease on 25th September 2024, the NHP provided a letter assist affected Sickle Cell Disorder patients.

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Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

NHS England on Oxbryta (Voxelotor) Withdrawal From the UK Market

NHS England sends a letter to centres regarding the 25.09.2024 withdrawal of Pfizer's Oxbryta (Voxelotor) drug for Sickle Cell Disorder.

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Learning Materials

Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

HCC Learning

Our Haemoglobinopathies Coordinating Centres (HCCs) have a vast range learning opportunities and resources available to clinical staff, patients, their families and the general public.

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Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

NHP TCD In Sickle Cell Disorder Webinar- Learning

NHP TCD in SCD Webinar held on 14 June 2023.

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Science & innovation | National Haemoglobinopathy Panel | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK | NHP Haemoglobinopathy England | Sickle Cell Thalassaemia | Rare Inherited Anaemia UK

New Therapies Session- ASCAT 2022

View 3 insightful presentations with Q&A from the New Therapies Session at the virtual ASCAT 2022.

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