HCC Research & Clinical Trials
View DetailsDescription
The Haemoglobinopathies Coordinating Centres (HCCs) are our closes network partners and are engaged in promising and worthwhile research and clinical trials. Links shared below.
Contact links
- {North Central London & East Anglia HCC=https://www.uclh.nhs.uk/theredcellnetwork/research} - {North West HCC={https://mft.nhs.uk/hcc/patient-parent-carer-zone/research} - {North East & Yorkshire=#file:2679864#} - {Wessex & Thames Valley=https://nssg.oxford-haematology.org.uk/red-cell/documents/trials/S87-hcc-open-clinical-studies-and-trials.pdf}
REDRESS
RElated haplo-DonoR haematopoietic stEm cell transplantation for adults with Severe Sickle cell disease
View DetailsSponsor
King's College Hospital NHS Foundation Trust
Description
This study is run by a multi-disciplinary team of doctors, nurses, scientists, statisticians, managers and administrators. The purpose of the REDRESS trial is to determine whether stem cell transplant using haplo-identical related donors is safe, effective, and cost worthy in treating adults with sickle cell disorder compared with the standard of…
Site name
Multisite
Site PI
Chief Investigator: Dr V. Potter
Start date
23/02/2023
End date
30/06/2027
Contact links
https://www.redresstrial.co.uk=https://www.redresstrial.co.uk redress@kcl.ac.uk
BioResources
View DetailsSponsor
NHIR
Description
This study aims to help with the development of more affordable DNA based tests for the diagnose of rare diseases and the discovery of genes causing rare disease. This requires for the volunteers to provide a small blood sample.
Site name
University Hospitals Bristol and Weston NHS Foundation Trust
Site PI
Dr S Lugthart
Start date
2018
End date
Ongoing
Contact links
Monica.lourenco@uhbw.nhs.uk
Rudy (Rare and Undiagnosed Diseases Study)
View DetailsSponsor
NIHR
Description
Rare and Undiagnosed diseases Study (RUDY) Using validated questionnaires and other information such as diagnostic history, clinical events, and treatments to gather information on rare disorders. Paediatric Study. The objective of the study is to gather information describing in detail the different types of rare diseases and what it is like…
Site name
Multisite
Site PI
Multisite
Start date
2018
End date
01-06-2023
Contact links
South West HCC, University Hospitals Bristol and Weston NHS Foundation Trust Site PI: Dr S Lugthart Site contact: Monica.lourenco@uhbw.nhs.uk North Central London & East Anglia - UCLH Site Contact: uclh.info.redcellnetworkhcc@nhs.net
