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NHS Blood and Transplant

NHS Sickle Cell and Thalassaemia Screening Programme

National Haemoglobinopathy Registry

The National Haemoglobinopathy Registry (NHR) is a database of patients with red cell disorders (mainly Sickle Cell Disease and Thalassaemia Major) living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres. The central aim of the registry is to improve patient care.

South Thames Sickle Cell & Thalassaemia Network

STSTN is a haemoglobinopathy collaboration led by healthcare professionals, including consultants, nurses, psychologists and others, across King’s College Hospital, Evelina Children’s Hospital and Guy’s and St Thomas’s NHS Foundation Trusts.