Educational Resources from our HCCs
‘Transfusion Challenges in Haemoglobinopathy’, an educational event hosted by the South Thames Sickle Cell and Thalassaemia Network
Here you can view the presentations given at this event hosted by the South Thames Sickle Cell and Thalassaemia Network (STSTN) on 24th February 2021. The video of the online event can be viewed further down the page.
Dr Sara Trompeter is a Consultant Haematologist with UCLH and NHS Blood and Transplant and one of the blood transfusion specialists on the National Haemoglobinopathy Panel.
Dr Stella T. Chou, M.D., is an attending physician in the Division of Hematology and the Apheresis Program at The Children's Hospital of Philadelphia and a Professor in the University of Pennsylvania Perelman School of Medicine.
‘Transfusion Challenges in Haemoglobinopathy’: an educational event for professionals hosted by the South Thames Sickle Cell and Thalassaemia Network (STSTN), 24th February 2021.
Lecture Series: ‘Sickle Cell and the Social Sciences: Health, Racism, and Disablement’, by Professor Simon Dyson
Professor Simon Dyson of the Unit for the Social Study of Thalassaemia and Sickle Cell (TAS) at De Montfort University (Leicester, UK) has published a free online lecture series based on his new book. The lectures are particularly aimed at university students interested in sickle cell disorders but are also suitable patients interested in learning more.
Sickle Cell and Wellbeing in NHS Services
Click below for a guide for policy, practice, and patients on wellbeing and sickle cell disorder (SCD). The guide is based on research examining the shielding experiences of people with sickle cell disorders and parents of children with the condition during the COVID-19 pandemic. The aim was to improve NHS services for this population group.
Stigma and Sickle Cell Disease: What do we know and how can we address this?
Click the link below to view a presentation given by Dr Kofi Anie MBE, Consultant Psychologist (London North West University Healthcare NHS Trust) on understanding and how to respond to the social and cultural stigmas surrounding Sickle Cell Disease.
The role of IMPARTS in delivering a holistic sickle cell service
Learn more about the IMPARTS screening programme within psychology services at King’s College Hospital for haematology patients.
Management of sickle cell disease - a guide for nurses
Click the link below to see a guide for management of sickle cell disease, with useful information including national standards, recommended medications and immunisation, pain management, and more.
Managing and supporting children with sickle cell disease in school
Click the link for a guide on how to support children with sickle cell disease in the school environment, including information on how to prevent crises, and good practice.
Information for Patients
COVID-19 and day-to-day life: making decisions about your risk of exposure
This information leaflet published by Oxford University Hospitals NHS Foundation Trust is intended to help patients make informed decisions about managing risk in daily life during the COVID-19 pandemic
Information for clinicians
Difficult transfusions
This is a presentation on ‘difficult to transfuse’ patients aimed at clinicians. Click the link below to view the presentation.