Rudy (Rare and Undiagnosed Diseases Study)
Sponsor
NIHR
Description
Rare and Undiagnosed diseases Study (RUDY) Using validated questionnaires and other information such as diagnostic history, clinical events, and treatments to gather information on rare disorders.
Paediatric Study. The objective of the study is to gather information describing in detail the different types of rare diseases and what it is like to live with them. This will be achieved through questionnaires every 6 months over a period of five years.
Site name
Multisite
Site PI
Multisite
Start date
2018
End date
01-06-2023
Contact links
*South West HCC, University Hospitals Bristol and Weston NHS Foundation Trust
Site PI: Dr S Lugthart
Site contact: Monica.lourenco@uhbw.nhs.uk
*North Central London & East Anglia
- UCLH
Site Contact: uclh.info.redcellnetworkhcc@nhs.net
